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How Cruel Life Can Be!


How cruel life can be, so cruel!
To give her such shocking news that day,
So much so, they cried for weeks,
And the pain never goes away!
A lovely young lass of just 24,
A beauty to beheld, a jewel in the crown,
And just like that, felled with a swoop,
She plummeted, down, down, down!

He took away her hopes and dreams,
For her future is as bleak as can be!
And the pain instilled in her mother,
Is as deep as the big wide sea!
A syndrome, a genetic syndrome!
Oh how cruel this life is to she!
And oh the guilt that her mother carries,
For something that happened, not meant to be!

Genetic, that's the word that hurts!
That causes her mother to cry,
For isn't it partly her fault?
Can anyone begin to tell her why?
Can they explain the situation to her mother?
And begin to justify what her future is to be!
Because the pain in her heart is gaping wide,
For the awful future her daughter will see.

She is the beauty in the rose so sweet,
The jewel in the golden crown,
And the heart that beats full of goodness,
Yet her life is to spiral down!
The future, yes, it's bleak!
For everything will fall apart,
Her whole life will be spent in pain,
And oh, how it's breaking my heart!

A disease of the tissues, muscles and such,
That won't hold her joints in place!
Her future to be with prosthetic parts,
And instead of her legs, a wheelchair to replace!
New knees, new hips, new all-kinds,
And a pain that will never subside,
All they can offer is; nothing at all!
And my pain is open wide!

So I look to my daughter every day,
And am amazed at her stamina and strength,
Though at times, of course she'll cry!
But her determination is one of length!
For she will never concede, like her mum!
We are as tough as tough as can be!
And yes, she will come through it all!
And aspire to all she can be!

So as I look to my daughter with pride,
My heart swells with so much love,
And every day, I raise my eyes,
And ask this icon, God above;
To help my daughter and keep her strong,
And to face each and every new day-
With strength and determination!
And at her side, forever stay!

Syndrome…I hate that word!
And I hate what it is doing to her!
How cruel life can be, so terribly cruel!!!
And it damn well isn't fair!!!

She Is My Daughter, My Icon, My Pride!

...She Is...

*** Marie ***






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